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Contact Us
Please mail photos, text, audio cassette or video as applicable to |
PPH Cure Foundation
1735 Connecticut Ave., NW
3rd. Floor
Washington, DC 20009 |
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Recognition to Outstanding Researchers |
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At the August 1996 meeting of the Untied Patients Association for Pulmonary Hypertension
(UPAPH), the PPH Cure Foundation awarded its first Scientific Progress Award to
Dr. Robyn Barst, M.D., Director of the Children's Pulmonary Hypertension Center
at the Columbia Presbyterian Hospital in New York. Dr. Barst donated her cash award
of $18,000 to the laboratory of her collaborator, Dr. Jane Morse, which has made
outstanding progress in the genetics of particular autoimmune dysfunctions affecting
patients with PPH. The work of Drs. Barst and Morse may very well lead to immunosuppressive
therapeutic interventions in subsets of patients with primary pulmonary hypertension.
Dr. Barst's Children's Pulmonary Hypertension Center is the only pediatric facility
of this sort in the world, and her clinical practice involves the world's largest
caseload of pediatric PPH patients. Dr. Barst's landmark 1996 article in the New
England Journal of Medicine, "A Comparison of Continuous Intravenous Epoprostenol
(Prostacyclin) with Conventional Therapy in Primary Pulmonary Hypertension" reported
on the scientific results of the clinical trial that led to FDA approval of Glaxo-Wellcome's
Flolan as the first therapeutic agent approved for PPH.
The Foundation has made a proposal to the American Thoracic Society for a Foundation-funded
permanent award to two researchers each year at the Society's annual meeting. The
purpose of the Foundation's recognition awards is to compensate for the fact that
because PPH is a rare disease, researchers working on it do not receive as much
support as their colleagues working on more prevalent diseases. The Foundation hopes
that its awards program will bring PPH research to the attention of more investigators,
and will thereby attract more scientists to the field and enhance the momentum toward
a cure. The Foundation has budgeted $36,000 for its Scientific Progress Awards in
1997.
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